Irene’s mother had a dream. Out of her five children, she wanted at least one to become a nurse.
Irene’s family belongs to Thickanamcode village in Kanyakumari, Tamil Nadu. Her father was a mason who worked on daily wages. With his meagre income, he found it difficult to take care of the family needs. That’s why her mother took up tailoring to supplement the family income.
The Leprosy Mission Trust India’s (TLMTI) Children Unite for Action (CUFA) project conducted a training workshop for children affected by leprosy supported by the project with education scholarship, in New Delhi, on November 29-30, to mould them into leaders.
A total of 33 children and 10 community volunteers from Bihar, Chhattisgarh, Maharashtra and West Bengal took part in the workshop.
Recently, in the State-level Leprosy Coordination Committee meeting in Tamil Nadu, chaired by Dr Ashraf Ali, Additional Director (Leprosy), Department of Health and Family Welfare, Government of Tamil Nadu, Mr Ganesh Muthusamy, a leprosy champion developed by The Leprosy Mission Trust India (TLMTI) gave the first-person experience of disabilities in leprosy and how leprosy stigma, disability and discrimination affects even educated persons affected by the disease. He spoke about the need for timely diagnosis and treatment of cases before nerve damage sets in to prevent disability, as leprosy is a leading cause of permanent physical disabilities among communicable diseases.
Identifying the best way of doing something (best practices) and sharing them is critical to continuous improvement. This helps bring everyone up to their highest level of performance. And that’s what The Leprosy Mission Trust India’s (TLMTI) CREATE project, along with National Institute for Empowerment of Persons with Multiple Disabilities (NIEPMD) (http://www.niepmd.tn.nic.in/
), did in a 3-day national-level workshop for sharing best practices by DPOs (disabled peoples’ organisations).